Evaluating the Impact of Social and Genetic Factors on Outcomes in Adolescent and Young Adult Cancer Survivors
This study examines the impact of social and genetic factors on outcomes in adolescent and young adult (AYA) cancer survivors of Hodgkin or non-Hodgkin lymphoma. Compared to both older adult and childhood cancer patients, AYAs with cancer experience different diagnoses and specific biological, clinical, psychological and social factors that affect their risks for post-treatment morbidity and premature death. Collecting samples of blood and health and treatment information from cancer survivors of Hodgkin or non-Hodgkin lymphoma may help doctors identify conditions that increase the likelihood of AYAs getting sick and dying after treatment of cancer and better understand how to address the needs of adolescent and young adult cancer survivors.
Eligibility
Inclusion Criterea
- Patient must be >= 18 years of age at the time of registration
- Patient must have been between the ages of 15-39 at the time of their first primary cancer diagnosis of Hodgkin lymphoma or non-Hodgkin lymphoma (NHL)
- Patient must have completed therapy (with a complete response, per clinician determination) at the time of registration
- Patients last date of prior systemic therapy for first primary diagnosis for Hodgkin lymphoma or non-Hodgkin lymphoma must have been within 3 years prior to registration
* NOTE: Systemic therapy refers to all anti-cancer therapy, including but not limited to chemotherapy, intravenous (IV) or oral targeted medications, or radiation, and administered via a clinical trial or standard approach
- Patient must have an Eastern Cooperative Oncology Group (ECOG) Performance Status of 0-3
- Patient must be English speaking in order to be able to complete the required QOL forms on this study
* NOTE: Sites cannot translate the associated QOL forms
- Patient must not be receiving active therapy for Hodgkin lymphoma or non-Hodgkin lymphoma
- Patient must have internet access through computer, tablet, or smartphone
- Patient must have email address
- Patient must have the ability to understand and the willingness to sign a written informed consent document. Patients with impaired decision-making capacity (IDMC) who have a legally authorized representative (LAR) or caregiver and/or family member available will also be considered eligible
Participating Clinics
North Star Lodge Cancer Center at Yakima Valley Memorial Hospital
Alliance for Childhood Diseases/Cure 4 the Kids Foundation
Hope Cancer Care of Nevada
Radiation Oncology Associates
University Medical Center of Southern Nevada
Comprehensive Cancer Centers of Nevada - Central Valley
Summerlin Hospital Medical Center
Comprehensive Cancer Centers of Nevada-Summerlin
Sunrise Hospital and Medical Center
Kingman Regional Medical Center
Comprehensive Cancer Centers of Nevada-Southeast Henderson
Hope Cancer Care of Nevada-Pahrump
Comprehensive Cancer Centers of Nevada - Town Center
Renown Regional Medical Center
GenesisCare USA - Fort Apache
Comprehensive Cancer Centers of Nevada
Cancer and Blood Specialists-Henderson
Saint Mary's Regional Medical Center
Radiation Oncology Centers of Nevada Southeast
Comprehensive Cancer Centers of Nevada - Henderson
GenesisCare USA - Las Vegas
Comprehensive Cancer Centers of Nevada - Northwest
OptumCare Cancer Care at Fort Apache
OptumCare Cancer Care at MountainView
OptumCare Cancer Care at Seven Hills
GenesisCare USA - Vegas Tenaya
OptumCare Cancer Care at Charleston
GenesisCare USA - Henderson
Radiation Oncology Centers of Nevada Central
University of Nevada at Reno Veterans Affairs Medical Center
Comprehensive Cancer Centers of Nevada-Horizon Ridge
Carson Tahoe Regional Medical Center
Urology Specialists of Nevada - Green Valley
Las Vegas Urology - Pebble
Las Vegas Urology - Cathedral Rock
Las Vegas Urology - Pecos
Urology Specialists of Nevada - Northwest
Urology Specialists of Nevada - Central
Urology Specialists of Nevada - Southwest
Las Vegas Prostate Cancer Center
Las Vegas Urology - Green Valley
Las Vegas Urology - Sunset